ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

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Reasons why to take medication regularly

Reasons why to take medication regularly

These tips are a team effort by Aida Regi Cosculluela and Dr Wiebke Papenthin, named patient representatives of the ERN RARE-LIVER Wilson working group and the ERN Youth Panel.
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CPMS Achievements 2023

CPMS Achievements of the network in 2023

ERN RARE-LIVER and the CPMS helpdesk team would like to thank all ERN member centres for their commitment and effort in contributing to the Clinical Patient Management System (CPMS).
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CPSS Position Paper

New Position Paper on Congenital Portosystemic Shunts

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
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Scientific News

More Scientific News

Registration is open: 12th European Conference on rare diseases and orphan products

The European Conference on Rare Diseases & Orphan products (ECRD) is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation take place,
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3rd Wilson Aarhus Symposium 2-5 May 2024

The Wilson Aarhus 2024 symposium will be an up-to-date, evidence-based, clinically orientated symposium with distinguished international faculty. Basic, clinical and translational research work by junior investigators will also be presented.
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New CPSS Position Paper

Congenital portosystemic shunts are often associated with systemic complications, the most challenging of which are liver nodules, pulmonary hypertension, endocrine abnormalities, and neurocognitive dysfunction.
New CPSS Position Paper Read More

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